by MASA | May 18, 2026 | PANS/PANDAS, Patient Resources
Download Visual Handout PDF here What are PANS and PANDAS? PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) are conditions in which a child suddenly develops...
by MASA | Feb 28, 2026 | PANS/PANDAS, Rare Diseases
Frequently asked questions about PANS/PANDAS are here! If you want to learn more about what is PANS/PANDAS, follow this link. Q1: What are the typical symptoms? Symptoms appear suddenly and may include: Obsessive-compulsive behaviors (OCD) Severe anxiety or emotional...
by MASA | Mar 28, 2025 | Alpha-One Anti-Trypsin Deficiency, Rare Diseases
How rare is an alpha-1 antitrypsin deficiency? This disease only reportedly affects roughly 0.03% – 0.06% of individuals. Is there a cure for alpha-1 antitrypsin deficiency? Currently, there is no known cure for this rare disorder, but there are treatment...
by MASA | Mar 10, 2025 | Immunodeficiency Hypogammaglobulinemia, News, Rare Diseases
Deadline: March 21, 2025 Download CIIC Patient Scholarship Application 2025 : You can submit your application to your provider. CIIC Annual Patient Scholarship: Empowering PIDD and Rare Disease Patients The CIIC (Coalition of Immunology and Allergy Clinics) is proud...
by MASA | Aug 15, 2024 | Drug Updates, Rare Diseases
What is D.R.E.S.S.? Drug Reaction with Eosinophilia and Systemic Symptoms (D.R.E.S.S.) is a type of drug allergy which can occur as a reaction to a large variety of medications. Symptoms include fever, rash, facial swelling, enlarged lymph nodes and kidney or liver...
by MASA | Jan 31, 2024 | Immunodeficiency Hypogammaglobulinemia, Rare Diseases
What is PIDD? What is PIDD? PIDD stands for Primary Immunodeficiency Diseases. These diseases are a group of more than 500 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. Because the immune system is...
